Your voice matters! This May, I joined fellow moms at Coalition of Skin Diseases' (CSD) Hill Day, representing Nevus Outreach. We shared our families' rare disease journeys with lawmakers, advocating for crucial policies like the Safe Step Act. Our personal stories amplified the need for change, proving collective action truly impacts lives.

Learn more about our nevus conference host family as you prepare to join us in Orlando 2026.

Aussie families united for the first-ever nevus gathering! 🎉 Partnering with Rally for Rare, Nevus Outreach helped launch Nevus Australasia Foundation. Over 40 attendees, including 10+ nevus owners, connected in a heartwarming picnic. Inspired by his US experience, host Steven Bouris is building vital support. The Foundation will empower families & foster community. ❤️

WHO backs WHA Skin Diseases Resolution! 🎉 Landmark step for global skin health, impacting millions. Nevus Outreach community, your voice is crucial! Contact your Minister of Health & use GlobalSkin resources to urge support before May 2025 WHA. Let's make history!

CMN Patient Representatives together at the Naevus Global Conference In April 2025, representatives from CMN organizations across nine...

Summer just got a whole lot warmer — Campfire Chats are here! Join Nevus Outreach all summer long for our new Live Series, featuring powerful conversations, expert insights, and real stories from the CMN community. From mental health to medical research, advocacy to connection — there’s something for everyone.

The Rally for Rare event in Pennsylvania was nothing short of incredible. From the moment guests walked into our private space, it felt more like a family reunion than a first-time gathering.

From hiding to shining one woman's journey with CMN and why the community needs each other.

As the attendees talked, it became clear just how powerful these small gatherings can be. Stories were exchanged, support was offered, and a strong sense of understanding filled the room.

The Nevus Outreach Rally for Rare New York, was filled with warmth, laughter, and an incredible sense of community.

The recent Nevus Outreach rally in Denver radiated warmth, connection, and a powerful sense of community. For many families, including first-time attendees, the event offered a unique opportunity to connect in person with others who share similar experiences.

The Rally for Rare event in Boston was just the beginning. I look forward to many more gatherings, conversations, and moments of support that reinforce what I have learned on this journey: We are never alone, and together, we can make a difference.

Rare Disease Day rally bloomed with connection. Though our conditions are rare, isolation vanished as we gathered, a small group united by something deep. Stories, hugs, laughter, tears – we created space to be seen. At "Tons of Fun," strangers found kinship, honoring Allison's joyful, fierce spirit. Though she's gone, her strength lives on, reminding us that "rare" doesn't mean alone.

Nevus policy impacts research, care, life quality. This blog breaks down legislation, progress, and how YOU can advocate. Your voice shapes the future. Stay informed, get involved, drive progress.

Small but mighty! Nevus Outreach's Orlando Rally for Rare on 3/8 brought heartfelt connections & lifelong support insights.

Missouri's Rally for Rare United Five States! Families with CMN connected, shared experiences, and found invaluable support.

We Rallied for Rare in North Carolina.

We rallied for rare in Washington D.C.

Become a Challenge Champion for Nevus Outreach by raising awareness and funds to support our mission in a fun way.

Tears, triumphs, and a whole lot of heart! 😭❤️ Our weekend in Boston with Nevus Outreach was an emotional rollercoaster AND a success.